justajoy (justajoy) wrote in costochondrits,

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Late night thoughts

Hi! Am Joy. I have costochondritis and I hate it with a burning passion.... well maybe not that much. When I was 13, I got it and well it laid dormant for a couple of years. When I was 16, it came with a great revenge. It has gotten worse over the months since then. I have feel scared sometimes when it starts getting so bad that I can't breath. I mean gosh this thing is terrible.

The worst part is when am in pain my facial expression does not change. Its ridiculous I am in terrible pain and some how I still manage to have the same goofy smile as always on my face. I have a fear that one day it will get bad to the point of me not being able to use my hands anymore.

The attacks comes out of no where these days. I can stand in the hallway at school and all of a sudden I have to sit down because the pain is so bad. I mean I get dizzy, my hands go numb and Oh Lord the pain it rips throw me as if I was a tree and it was the wind blowing so hard that some of my leaves went hurling to the ground.

It's sad that no one in my house understands it. I stand at constant criticism that I can get up and move when no one understand the severity of the pain that engulfs my body. I have grown to love sleep and the moments when no hint of paain takes my body. In sleep I can breath ....except when I stop breathing because the pain decides it want to wake me up.

The treatments so far are of no help. Nothing stops the pain from increasing. I have found methods of temporary relief such as...... boiling garlic and onion in water then sweeting it with sugar drinking this old remedy helps to ease the muscles. Most of my research on this subject says another good temporary relief is marijuana. However, I will never venture to that side.

Most days it feels like I am at wits end. I just wish there was a cure.
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Hello. My name is Sarah. I'm 20 years old and have had Chronic Tietze syndrome since March 2012. It wasn't so bad at first, and I did what my doctor told me to do; take the pills and apply the heat. But in May 2012 I became ill. After recovering from the illness, I started to feel nausea when at work, and had intense pain in my chest. I visited my GP about three times, but he just made things worst.
On one occasion I was taken to the Urgent Care Centre at Leicester Royal by my mother. After waiting for about an hour or so, I was finally seen. The doctor, after hearing my story, told me to lay down on the bed, and pressed my chest and stomach asking me if I felt pain or discomfort. He then told me that the pills my GP had given me had stared to damage my stomach, and gave me new pills (Codeine Phosphate and Lansprazole), then sent me on my way. I took them but I felt no better! One day on November 2012 one night I was making my mother and myself a cup of tea when I had an intense pain in my hip area. I fell to the floor and had to be carried by my parents to a chair. Once sat down I stared to have a type of fit; my body was now not under my own control. The next morning I awoke to feeling drained and dizzy. My legs could no longer hold any weight (I was curling on the floor), and the pains in my chest where making me breathless; these pains feel like your rib cage is being torn out and your heart is being squeezed tightly. I carried on my day regardless, not wanting this to get me down. But around 2.00pm I had another pain in my hip and ended up having another fit, then collapsing on the stairs. My mother called for an ambulance and a paramedic arrived to aid me. She tested my blood pressure, sugar levels and so on. Her conclusion: nothing was wrong. Mum demanded an ambulance to take me to the hospital for a proper checkup. When I arrived, after being questions many times by many people, I was put through the same tests I had had done previously, and more! From 2:15pm until 9.00pm I was in hospital. They took four syringes of blood, made me pressed my swollen painful chest and made me use a commode that older people use! At the end of it all the young doctor told me I was fine, but had Tietze Syndrome (as if I did not already know!). She told my mum to buy some Lansoprazole from the hospital pharmacy and send us on our way. Mum paid but they told us we had to pick them up the next day! So My mother when back the next day as requested, but had to pay another £7.65 because the night before the women that served my mother had not given a receipt, just a slip that apparently didn’t mean a thing to the pharmacy; £15.30 for pills that do not work....brilliant! thank you NHS!!! And even today I'm on this pill, with no change to my health a all. Although I am 20 years old (the age for my life to begining and for me to be having fun ect), I feel like an 80year old. Its got so bad that I can't even wear a bra anymore becasue of swelling!!!
Now I'm thinking about maybe talking to another doctor about surgery to have it removed.....