I'm the reason this reason this community is not costocondritis. When I joined LJ years ago, I started it. One other person joined. No posts were made except initial ones by me. So I dumped it. I don't think I could get it back now, either, since they purged the names.
Secondly, I'm sad this place isn't more active. Granted, I haven't bothered to do an interest search on costocondrits in ages, because I've only met two people in my life who have had it.
I developed Tietze syndrome around 7/8. No one can figure out why (I have ideas but nothing solid) and I wasn't diagnosed until my teens. And it was a haphazard guess by a doctor who was filling in for my regular doctor at that.
It wasn't until I was 17 or so that we finally figured out there was a treatment of sorts, in the form of cortisone shots. Up until then, suffering in silence was pretty much my option. Heat compresses and general pain killers do nothing for me.
I've found as I've grown older that the Tietze syndrome is a real pain in the butt. It's limited me because when I over do it or become stressed and/or anxious I have attacks. Luckily, two really big dosed shots to my cartilage every 3 or so years knocks it back and I can live a generally good life.
It's sad this community is not more active, but the general public's knowldge of these two conditions is sorely lacking. I can't count anymore how many times I've had to try and make people understand what I have and what it does to me.
And there you have it.