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Costochondritis and Tietze's Syndrome Support

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9/13/12 01:41 am - justajoy - Late night thoughts

Hi! Am Joy. I have costochondritis and I hate it with a burning passion.... well maybe not that much. When I was 13, I got it and well it laid dormant for a couple of years. When I was 16, it came with a great revenge. It has gotten worse over the months since then. I have feel scared sometimes when it starts getting so bad that I can't breath. I mean gosh this thing is terrible.

The worst part is when am in pain my facial expression does not change. Its ridiculous I am in terrible pain and some how I still manage to have the same goofy smile as always on my face. I have a fear that one day it will get bad to the point of me not being able to use my hands anymore.

The attacks comes out of no where these days. I can stand in the hallway at school and all of a sudden I have to sit down because the pain is so bad. I mean I get dizzy, my hands go numb and Oh Lord the pain it rips throw me as if I was a tree and it was the wind blowing so hard that some of my leaves went hurling to the ground.

It's sad that no one in my house understands it. I stand at constant criticism that I can get up and move when no one understand the severity of the pain that engulfs my body. I have grown to love sleep and the moments when no hint of paain takes my body. In sleep I can breath ....except when I stop breathing because the pain decides it want to wake me up.

The treatments so far are of no help. Nothing stops the pain from increasing. I have found methods of temporary relief such as...... boiling garlic and onion in water then sweeting it with sugar drinking this old remedy helps to ease the muscles. Most of my research on this subject says another good temporary relief is marijuana. However, I will never venture to that side.

Most days it feels like I am at wits end. I just wish there was a cure.

5/17/12 11:44 am - gavins1 - heart pain

Hi, my name is Gavin. I'm 32 and have suffered with chest pain since i was 19. I have had many many tests done and no official diagnosis has been made. My initial test resulted in costochondritis. I mainly get the pain in my heart the day after drinking and it usually lasts about 2 days. The night time is the worst as i'm unable to sleep and keep getting shortage of breath. I sometimes (when I do eventually fall asleep) wake up gasping for air. When I get the pain I feel like I have to hold my chest, its a weird sensation to explain. I don't get pains in my left arm just in the heart area. I barely drink now coz its not worth it, maybe have one light beer a week and anything more I suffer the next day with the pain. I would love to hear if someone has a similar issue and what you do to control it.

4/15/11 12:26 am - tay818 - Costochondritis

I'm 15 years old and I recently got this disease or whatever it is.. im soo confused and if any of you are willing to tell me more about it that would be awesome.. like will it go away? so it just have this major pain in the heart area for you? and how to get rid of it.. it's keeping my from sleeping now and i just don't want it anymore.... please

6/18/09 07:45 pm - standingsilent - A Little Cry for Help

Hey there, my name is Heather and I'm 22 years old. Four years ago I was diagnosed with Fibromyalgia and six months ago, Costochondritis.

I like to think in the last four years since I've been diagnosed with FMS that I've made progress, but the past year has made me wonder if I'm getting worse. It seems that every few months I'm developing a new symptom or problem that ultimately makes my condition harder.

A year ago, I started having the feeling that I was having a heart attack; my heart would flutter dramatically and painfully, make me dizzy and sick, and even my left arm would go numb. I immediately was rushed to an ER, where I underwent a battery of blood tests, EKGs and eventually was put on a halter monitor - all the results came back negative, nothing wrong with my heart.

For a whole year, on and off, I would go through the agony of feeling as though I was having a heart attack. Until finally, it started happening on a weekly basis and now, everyday is a a full day of chest-crushing pain, hurting to breathe, distortions in heart rate and weakness. I had finally had enough of a doctor not giving me an answer, so I looked up 'fibromyalgia' and 'chest pain' one day and found an article about costochondritis. I realized that I not only fit the profile of those who usually are effected by it (60-70% of FMS suffers experience costochondritis symptoms), but my symptoms were identical to those listed.

So, I took the information to my doctor and hallelujah; I had an answer. Unfortunately, an answer is not a cure to the problem.

I started taking a different anti-inflammatory, started taking a higher dose of Lyrica and using a heating pad to alleviate my symptoms, but unfortunately it's not doing anything. And so far, the only information I can find on it says that the only other treatment is steroid injections.

Right now, I feel like I'm wandering around in the dark with no hope of ever getting better. Having the feeling of a heart-attack is scary enough, but when you add the anxiety which follows with the continuity of symptoms, it becomes life-threatening.

A month ago I was hospitalized because during a costochondritis flare, I was so absurdly pained that I had a panic attack and couldn't breathe. By the time paramedics got to me (I live 2 minutes from the ambulence barn), I had a diminished oxygen saturation level and I was barely coherant.

I cannot begin to explain how frightened I am, or how intense my pain levels are getting, but no amount of medication, narcotics or holistic treatments are giving me any ease. I'm scared for my life, I'm scared one day there will be a flare so bad that I won't be able to get to a hospital immediately or I'll continue to be in an amount of pain that makes going to school or work impossible.

Anyone, with any advice, would be greatly appreciated. I'm certainly at my wits end.
Thanks ahead of time.

1/30/07 06:36 pm - ugoatgirl - me too and then some!

I'm a 47 year old female who was diagnosed with costochondritis 20 years ago. At the time we thought it was a one time thing. With NSAIDs it went away and that was that. 'Til it came back about 6 months later and lasted longer. That's how it went for years with the episodes spontaneaously showing up more frequently and lasting longer. I've tried everything. Now I live with it daily. It never goes away, just sometimes the pain is unbearable, sometimes mild. I had an MRI some years back (one of many, along with bone scans and CT scans) and it turns out I have something else almost no one else does. It's called sternoclavicular hyperostosis. It's an overgrowth of bone on the clavicle (collar bone) in my case. Causes rib, neck and shoulder pain. Turns out there's no real treatment for that either. It is something to mention to your doctor and if they have heard of it, (probably not), it could be something you have instead of or in addition to the costochondritis and they may know of a treatment. I currently take Celebrex (after years of Arthrotec) and Soma or Flexeril and I take Vicodin when the pain is too great. I also have degenerative disc disease and after 3 surgeries (successful, I might add) I am facing a fourth. I won't get into my depression brought on by years of chronic pain. I'm just glad there are others out there like me. Well, not GLAD! I wish we all felt better. But misery loves company as the saying goes.

12/15/06 04:48 pm - rambleido - Be able to thank a Doctor...

I don't personally have Costochondritis, but my younger brother was raised with Juvenile Rheumatoid Arthritis (JRA), so I'm quite familiar special needs families and the challenges of a serious disease. There were so many doctors along the way that helped him succeed, helped him to walk, to live a normal live. These doctors went far above and beyond the call of duty.

This holiday season, thank a medical professional that has touched your life in a special way.. Visit www.hero.md to tell your story and thank someone today.

Check out this site to say THANKS!

2/7/06 02:20 pm - chronicpainblog - Ow! A Chronic Pain Relief Blog

Hey all,
I wanted to let folks know about my new blog. I have a variety of chronic pain conditions including Fibromyalgia, sciatica, RSI, TMJ... OK, I won't list them all cause that's just depressing. Anyway, I've started a Blog that's about specific ways of coping with chronic pain - I'll be posting product reviews, research articles, relaxation methods, and my own sarcastic commentary. Basically just about real-world pain management for when the pharmaceuticals alone just aren't cutting it. Realistic, but with a positive, proactive spin.

You can find it at:

Ow! A Chronic Pain Relief Blog

It's brand new. Stop by, and say hello. If you have a blog you'd like me to link to, let me know (especially if it mostly deals with physical and mental health issues or pain).

There's an RSS feed available, if anyone wants to syndicate it for LJ.

Thanks :) And please let me know if this post is not appropriate for this community! I'll be glad to remove it.

(This post has been crossposted, please feel free to forward it to other chronic pain sufferers!)

2/1/06 07:58 pm - cate211 - Hey Everyone!

Hi everyone. My name is Roni Ann and I'm 21 years old. I am SO GLAD to see this community. For years, the doctors have been telling me that I have costochondritis and I was beginning to feel like it was either rare or just no one around me suffers from it. They told that the reason I suffer from it so often is because of all the scar tissue I have in my chest from my open heart surgery and PA banding (I was born with 3 holes in my heart and had 2 patched when I was a year old).The doctors always told me to pop like 4 ibruprofen at a time for it. I've finally learned the triggers for the most part and avoid them, but I still suffer from it too frequently.

Anyway, I don't have anything I want to say that's very significant right now but I am so happy to be able to join this community and hopefully learn more about "costo" as I call it. I look forward to participating in this group and talking to the rest of you.

1/31/06 10:55 pm - das_hydra - Hi

Firstly, a brief history.

I'm the reason this reason this community is not costocondritis. When I joined LJ years ago, I started it. One other person joined. No posts were made except initial ones by me. So I dumped it. I don't think I could get it back now, either, since they purged the names.


Secondly, I'm sad this place isn't more active. Granted, I haven't bothered to do an interest search on costocondrits in ages, because I've only met two people in my life who have had it.

I developed Tietze syndrome around 7/8. No one can figure out why (I have ideas but nothing solid) and I wasn't diagnosed until my teens. And it was a haphazard guess by a doctor who was filling in for my regular doctor at that.

It wasn't until I was 17 or so that we finally figured out there was a treatment of sorts, in the form of cortisone shots. Up until then, suffering in silence was pretty much my option. Heat compresses and general pain killers do nothing for me.

I've found as I've grown older that the Tietze syndrome is a real pain in the butt. It's limited me because when I over do it or become stressed and/or anxious I have attacks. Luckily, two really big dosed shots to my cartilage every 3 or so years knocks it back and I can live a generally good life.

It's sad this community is not more active, but the general public's knowldge of these two conditions is sorely lacking. I can't count anymore how many times I've had to try and make people understand what I have and what it does to me.

And there you have it.

7/31/05 06:43 pm - mels_fibro - I hope this community is still active

It is sad to see no one else is here. Perhaps they don't know they pain they suffer in their chest is. I had to go online to find a name for it, because my last episode felt like breast pain.

The first time I had it my doctor just told me it was a form of arthritis.

Now I've had 4 episodes in a year to two years. I'd really have to check with my doctor to get an exact date on when the first one occurred, but two years seems a little long.

It has never been in the same spot, it started low and has been as high as my just below my collar bone. Don't you feel my doctor should have sent me for testing since this has been reoccurring?

A little medical history. I have Fibromyalgia.

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